But, since I began meds for sarcoidosis, I have a great track record for getting most of the side effects of most of those meds.
I am meticulous about researching every med that is prescribed. Being an informed patient is important to me.Why than, am I always surprised when my body gets hijacked by a side effect? I suppose trying to keep a positive attitude that this will be the ‘magic’ med, only thinking of the good that might come of it and burying the bad.
The thing with meds is, you don’t know until you know. There is no prediction, no safeguarding, and no way to prevent your body not tolerating the med. There may be ways to mitigate after the fact, such as, lowering dosage, discontinuing use, assigning another med for a med, or bite a stick and tough it out. In my personal opinion, all these options suck.
You can imagine after years of getting bad side effects, a person could grow a bit cynical and self protective, maybe even hyper sensitive. So I was pleasantly surprised when, it appears, the universe has given me a break on my Cytoxan experience. It is week 2-3 after my first Cytoxan infusion and I haven’t had any discerning side effects.
Nausea is very mild, no mitigating drugs needed. Pain has been worse on some days but nothing a seasoned sarkie can’t handle. Quite a few of the side effects of Cytoxan are also sarc symptoms so hard to tell, really. Hair thinning but no excessive loss. No bladder or kidney issues at this point and lab work looks like it should.
Hard to believe I am tolerating the most toxic drug I have ever taken, but, I will take this gift and appreciate my reprieve for as long as it lasts.